High
quality delivery of evidence-based practices is a good thing
There are evidence-based, “consumer”,
and likely economic arguments for ensuring that any approach to
intervention/support is implemented with fidelity. By fidelity here, I am
primarily thinking about high quality delivery of an intervention. Any
evidence-based practice needs to be delivered with a high degree of quality
(i.e., “done properly”) to have the best outcomes and to deliver anything like
the promise of any more tightly delivered original research-based evaluations
of that practice. That’s the evidence-based/research argument.
My “consumer” argument is simple and
actually is the most important. In this case, people with intellectual
disabilities and their families and carers deserve high quality support and
intervention. Thus, they also deserve access to the highest quality Positive
Behavioural Support.
The economic case derives from the first
point about achieving better outcomes with better implementation (higher
quality delivery of supports and intervention). These days, there is
considerable interest in an “invest to save” perspective: if services can
invest in wider scale implementation of evidence-based practices of various
kinds, the high costs of picking up serious problems later might be avoided. In
the case of people whose behaviour is described as challenging, perhaps this
could include avoiding high cost placements in inpatient settings, shorter
stays in such settings, shorter term use of high staffing ratios, and making
sure people can stay in their own local community with security of residence
(thus avoiding the costs of multiple moves between services and settings).
Please note that any simplistic economic case being made here is not in my view
the most important, but it is a reality we have to address.
Any economic models for investment in
new services, in training for support staff, or the delivery of evidence based
practices generally assumes at least a reasonably effective impact from the
services, training or intervention. Basically, there is an assumption that
whatever is done will be done well.
Current
“standards” for Positive Behavioural Support
There may be several ways to improve the
chance of high quality implementation of evidence-based practices, but the key
features identified in the research literature relate to organisational
commitment, good quality training of staff and ongoing expert supervision, and
the articulation of clear standards for individuals and services/teams to meet.
How does this relate to the current
situation in the UK around PBS? The key is in the answer to some apparently
simple questions: How do I know that this practitioner is an expert in PBS? How
do I know that this PBS training course will ensure I develop high quality PBS
competencies? How do I know that this service/this team “does” high quality
PBS?
The answer to these very important
questions at the moment is that you have to decide for yourself/work it out yourself.
The PBS Academy has produced a very detailed framework describing PBS
competencies (see: http://pbsacademy.org.uk/pbs-competence-framework/). An answer to the “How do I know?” questions could
be linked to this framework such as: “I received training based on the PBS
competencies framework”, or “This training course is mapped onto the PBS
competencies framework”. Unfortunately, this does not tell us very much because
we naturally then need to ask something like “but who says it was any good?”.
The PBS Academy has also published series of resources that help different
stakeholders work out the answers to the “How do I know?” questions themselves.
Thus, there are tools for people with intellectual disabilities, for family
carers, for support staff, for service providers, for commissioners, and soon
for people charged with inspecting the quality of services.
Personally, I think that these PBS
Academy resources are helpful not least because they were produced with people
from each of the stakeholder groups and are designed to address the particular
nature of their “How do I…?” questions. These resources are in any case
produced under a Creative Commons license so that they can be easily taken on
board and amended by anyone who wants to use them. As I have said before,
please do use and adapt these resources to make them work for you.
In terms of individuals delivering PBS,
some professionals will point to the international Behavior Analyst Certification
Board (BACB) and their levels of certification. These are indeed clear
standards, and you should expect anyone with these credentials to know all
about the Applied Behaviour Analysis aspects of PBS. However, behaviour
analysis certification is not UK-based nor necessarily sensitive to the UK
context, it is not specific to PBS, and of course ABA is a core part of PBS but
not the whole of PBS. So, this may be useful but I do not think that it is a
full solution and it primarily addresses the highest level expert practitioner
only. There are University courses in ABA in the UK at postgraduate level in
particular. Graduates from these programmes are likely to understand much more
of UK context and may also meet the BACB certification requirements.
Interestingly, some UK Universities from
2016/17 are bringing in new PBS-specific routes through their postgraduate
training in ABA, and others (some of the same ones too) have been delivering
“challenging behaviour” courses for several years. Other PBS/challenging
behaviour training courses have been developed that are accredited against a
relevant UK qualifications framework. All of this training is delivered by
respected education providers and is “accredited” somewhere within the UK
public education provider/system. Although this is a good thing and they are
undoubtedly good courses, there is a still no nationally agreed standard for
PBS training against which these existing training courses can be tested. In
addition, there are many PBS training providers who offer their own quality
assurance (and several take this seriously) but they are conflicted as training
providers, and there is no national standard for PBS training against which
they can be checked.
UK
accreditation for Positive Behavioural Support
Currently, in the UK, there are no
nationally agreed standards for PBS. Does this matter? My argument is that it
certainly does. First, PBS is recommended as a part of the plans going forward
to address the Transforming Care agenda. It is not the whole solution to the
challenge of challenging behaviour, but it is a part of it. Second, NICE
guidance and quality standards are also clear about the need for
functionally-based approaches (essentially, PBS). Thus, it is important to ask
about quality and standards of PBS as a recommended approach.
Some may argue that setting standards
and then having an accreditation process will cost money and that we cannot
afford this. This is likely true – accreditation does cost money. How else though
can we set proper standards and ensure high quality without such a process?
Relying on people to sort it out for themselves (the current situation) is not
appropriate. What is needed is a national accreditation process that can be
trusted so that people do not have to sort it out themselves.
What if it does cost more money? Don’t
the people affected by the transforming care programme and care scandals
deserve high quality supports? In addition, if we can raise standards and
somehow ensure higher quality supports we won’t have to use the sticking
plaster high cost responses that we use when things go wrong. In the end, we
may have invested and indeed saved!
The good news is that the PBS Academy
has secured some funding and contributions of time from people to write/develop
PBS accreditation standards for individuals, providers/services, and for PBS training
courses. Thus, we’ll get on with this writing process using a similar methodology
to that we have used before. The resulting standards will also be released as
always using a Creative Commons license – hopefully by Spring 2017. This will
mean that whoever might be tasked with PBS accreditation in future will have a
head start. If the powers that be do not finally see the wisdom in
commissioning PBS accreditation nationally, then at least the standards will be
there for those committed to high quality PBS to use as a community.
Is there anything we can learn from how it is regulated who practices CBT? This isn't too distant a field of practice and must have had similar concerns of people claiming to offer CBT without the right training/competence.
ReplyDeleteIndeed Jonathan, in the end there would need to be an accreditation body established. This could look a lot like the BABCP who accredit cognitive and behavioural therapists in the UK.
DeleteLoved the Blog Professor Hastings. Some great points. I'll have to look more into the PBS competency framework to let this guide our practice as social care providers. thank you.
ReplyDeleteThat's good to hear, and do check out all the other PBS Academy resources connected to the competence framework.
DeleteIn commissioning services, there needs to be the understanding of who needs PBS, there are those who think everyone needs PBS (including panel members on CTR's). This can encourage services to promote their high cost services because they do 'PBS' and dilutes the quality, or fidelity further.
ReplyDeleteWhat all people need is to be treated with dignity and respect and to have their wants, needs and wishes acknowledged, valued and achieved.
I'm in total agreement with the PBS academy and the need for national agreed standards, without them how do we know that services are delivering the right support and people are in receipt of the quality of support and treatment they deserve?
Thanks for the comments Paula. Indeed, how do we know!
ReplyDeleteI very much agree that "all people need is to be treated with dignity and respect and to have their wants, needs and wishes acknowledged, valued and achieved". This is the core and then we have to ask what are some ways we can sensibly deliver just those things.
I do think we need to be careful about saying either everyone needs PBS or not everyone does. The issue is that PBS is not a one size "treatment" for all, but a framework for personalising the supports that someone with, or at risk of, behaviour that challenges needs. PBS for person A is likely to look different to person B. So, in some senses, all of this group of people do need PBS - what they don't need is exactly the same PBS-based supports.
I'm not convinced that enough people are getting this in terms of what PBS actually is...
This comment has been removed by the author.
ReplyDeleteI think the confusion comes about because the key principles of PBS, are what most of us would consider to be the expectations within person centred and capable service delivery:
ReplyDeleteBehaviour is understood (from an FA/scientific perspective)
The needs of the person and their carers are recognised with the goal being to achieve the best possible quality of life
The individual is supported to have the skills to meet their own needs using active support, creative approaches and positive risk taking.
I've often heard people say 'it's not rocket science' in relation to PBS and I think that's a disservice to the practitioners out there who are delivering on the core competencies. It also supports the idea that anyone can do it. The understanding of the function of the behaviour is the bit people miss out, instead of understanding why a person needs to behave in the way that they do they attempt to stop the behaviour with approaches that don't match.
It's about values and beliefs, high quality leadership and raising expectations so that the people using these services achieve their potential and lead happy and fulfilling lives, as all of us want.
The CQC report on Mendip House this week (The National Autistic Society), highlighted negative culture, poor leadership, environments engineered to meet staff needs rather than service users needs, lack of care and appropriate communication strategy's and so much more, all the opposite of what a capable environment would look like.
There are so many angles to think about this from, I'd like to see more accountability for commissioners coming through the national standards when they are in place, the guidance for them on what a PBS service should look like is as clear as day so how do situations like Mendip House continue to be exposed?
Excellent points Paula, thanks. Also thank you for the example that clarifies one reason why it is crucial to have high standards - that it does indeed matter for people's lives.
DeleteHello ProfHastings
ReplyDeleteWould it be possible for me to get a copy of your papers: "I'm not a patient, I'm a person" and the review of carer research "He's hard work, but he's worth it"?
Many thanks
Yes of course just email me
DeleteR.hastings@warwick.ac.uk
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