I’ve already written a blog recently about some
thoughts emerging from the campaign ABA4All [https://www.facebook.com/ABAforallchildren].
This new blog is partly in support of this campaign, and partly to build on
arguments from previous blogs over the past couple of years.
ABA
(Applied Behaviour Analysis) is a dirty “word”
Let’s face it, the term ABA carries an awful lot of
baggage. People think it is an intervention/treatment in itself (rather than an
applied science), think it is about supporting children with autism, and ABA is
also associated with traumatic experiences for many professionals and policy
makers. By traumatic experiences, I mean being subjected to sometimes
fundamentalist proponents of ABA who insist that things must be done in
particular ways because “that’s what the evidence says” and also argue that ABA
“has the best evidence in the field of autism”.
I think we should all be using more precise terms
here. So, let’s stop talking about ABA at all. Instead, let’s use labels that
clearly say something about the focus of any intervention/treatment approach.
As an example, the approach that combines ABA understanding and methods with a
strong focus on values and attention to the person’s context to “treat”
challenging behaviours in people with developmental disabilities is called
Positive Behaviour(al) Support (PBS). Everyone loves PBS. It sounds nice, and
it carries little of the negative baggage of “ABA”. However, PBS is simply good
ABA. An ABA treatment/intervention approach or package has been developed to
make a positive difference to the lives of people with developmental
disabilities. When we talk about evidence based treatment/intervention and best
practice working with individuals whose behaviour challenges, we don’t say that
they are receiving ABA. It would make little sense to do so, because “ABA” does
not communicate the specificity that is PBS. We just say they are receiving a
PBS intervention or service.
The same case applies to early intervention for
children with significant disabilities (intellectual disability, any number of
syndromes associated with intellectual disability, and autism). I’m suggesting
that we use a term that makes clearer what the treatment/intervention is. My
suggestion is Early Behavioural Intervention (EBI). This term is not new – we
and others have used it in international peer review journals when reporting on
research studies. EBI can be used to refer to high quality support using
behavioural principles and methods (i.e., drawn from the science and practice
of ABA) delivered explicitly with early intervention in mind.
EBI, I would argue, refers to a number of
intervention/treatment approaches that have behavioural methods at their core
but emphasise different aspects of teaching methodology and also different
settings in which intervention/treatment takes place. A non-exhaustive list
would include: the Lovaas method, Discrete Trial Training, “ABA”, Pivotal
Response Training, Verbal Behaviour, Natural Environment Teaching/Training, the
LEAP model (from the USA – in schools), CABAS schools, and the Early Start
Denver Model.
Why
not “Intensive”?
Many research outcome studies in the field of autism
have used the term Early Intensive Behavioural Intervention. The intensive part
really emerges from the earliest evaluation of an EBI approach in autism by
Lovaas. Lovaas’ treatment study published in 1987 compared a 40 hours per week
intensive EBI approach, to a lower intensity (10 hours per week) model, and a
control group who did not receive either treatment/intervention. Now, the 40
hours per week group of children did much better than either of the other two
groups and so the argument for Intensity was born.
There are, however, two problems with using the
Lovaas study to support an argument that EBI MUST be intensive to be effective.
First, intensity was not manipulated experimentally – children were not
allocated randomly to one of the treatment conditions. So, the groups could
have differed on some other variable that explained the difference in outcomes
(or at least some of the difference). Second, the 10 hours per week group
differed in other key ways to the 40 hours per week group. These included:
some treatment procedures could not be delivered to the 10 hours group because
of lack of resources/staffing time, more other interventions were also used
alongside the 10 hours, and the children were slightly older.
A second argument is that very positive outcomes for
children with autism and children with an intellectual disability have been
seen in studies where lower numbers of hours have been delivered (e.g., 15
hours and fewer). A third argument “against” intensity is the results from our
large scale analysis of hundreds of children with autism who received EBI as a
part of research evaluation studies around the world [see http://profhastings.blogspot.co.uk/2013/04/the-most-significant-and-original-data.html].
When we looked at variables associated with outcomes for the children, higher
intensity (number of hours per week) did predict better outcomes. However,
intensity explained only a small amount of outcome. Something else (or some
combination of other factors) explains an awful lot more!
The argument FOR intensity in early intervention is
an international consensus about the fact that any early intervention for
children with significant disabilities (not specific to EBI at all) ought to be
intensive. The assumption is that a higher “dose” will lead to more cumulative
learning and so better outcomes overall.
Coming back to the UK again, a further reason for
arguing for EBI and not EIBI is that 40 hours per week is completely
unrealistic. The more we push for this, and it clearly cannot be afforded now
or probably ever, the more that the wider population of children with
significant disabilities will lose out to the small number of children who are
able to access this sort of intensive intervention.
Quality
delivery by experts
It is not the case that just anyone can deliver high
quality and effective EBI. All of the existing research evaluation studies
(including all of the “treatments” I claimed are EBI –PRT, ESDM etc etc.),
tested treatments/interventions delivered by highly trained and supervised
individuals. A couple of hours of training generally in “ABA” or an eclectic
mishmash of approaches is not the same as what has been delivered in research
studies and evaluated as evidence-based.
In the UK, hundreds of students have now graduated
from post-graduate University courses that teach the theory and practice of
ABA. Universities delivering, or who have delivered, these courses include:
Bangor, Swansea, Cardiff, Kent (Tizard Centre), South Wales, Queens University Belfast, and Ulster. Of
course, individual practitioners need additional training in particular
intervention approaches (like EBI) and to understand the context in which they
will be working. They also need ongoing supervision (just like any health,
social care, or education professional in the UK). However, the point is that
trusted and respected UK higher education institutions already have training
courses that can support the experts who will design and deliver EBI services.
More training courses, run by these experts, are also probably needed in the UK
for staff of various kinds who will do most of the hands-on delivery of EBI
(e.g., early years staff, teaching assistants).
EBI can be delivered effectively by specially
trained and supervised professionals. UK state funded Universities can be
trusted to help with this task of workforce training and development.
EBI
for every child with significant disabilities in the UK
Here’s where we return to the ABA4All campaign. A
central pillar of ABA4All’s work is parent choice. Even if you do not believe
that EBI works better than other approaches typically available to children
with autism and with other disabilities, it is a respected evidence-based
approach delivered by well-trained professionals in the UK. There is every
reason to offer parents EBI, or to make sure they are able to choose EBI for
their child and family. Not everyone will want to choose EBI and that’s fine.
At the moment though, ABA4All argue that parents and children are explicitly
denied EBI. I agree.
ABA4All also campaign on the basis that what I’m
calling EBI should be a choice that is available universally in the UK, so for
all children who may need this boost early in life. Again, I agree. I think
this does have some implications. The main one is that 40 hours per week is not
going to be the answer when it comes to universal choice/provision. In any
case, the key argument I make above is for quality and not necessarily
quantity. So, what might be affordable – what existing funding mechanisms might
be extended to open up the choice for parents of being able to have EBI for
their child? How can we make sure that enough people are trained, properly
supervised, and properly quality-assured to make this happen? The fact that
universal availability is a challenge – to scale-up from the current provision
across the UK – is not a reason to do nothing.
I also suggest that we must campaign outside of the
autism box. Yes, children with autism can benefit from EBI, we have plenty of
data to show that, and many parents want EBI for their young children with
autism. However, there is nothing really autism-special about EBI. With only
very minor changes, the model works very well for children with
intellectual/learning disabilities. All of those children and their parents
need the choice of EBI to maximise their early life chances.
Parental choice and the relevance of behavioural
methods for teaching skills to children with significant disabilities also
extend beyond early intervention. Older children desperately need skilled
behavioural practitioners supporting them at home, and in mainstream and
special education settings. Let’s not forget these children and their families.
It is important to start somewhere though, and I think I have to agree that
winning a battle about EBI may be the best way to establish a beachhead.
Good luck to ABA4All.